https://www.svone.org/events daily 0.75 2026-03-20 https://www.svone.org/events/sidmgiwred7kpcb55dmtrfzquqwukh-7pwdw monthly 0.5 2025-12-23 https://www.svone.org/events/sidmgiwred7kpcb55dmtrfzquqwukh-jbrbf monthly 0.5 2026-03-13 https://www.svone.org/events/sidmgiwred7kpcb55dmtrfzquqwukh monthly 0.5 2025-12-23 https://www.svone.org/events/npc-qic-legacy-research-proposal-deadline-l6npx-e7zjy monthly 0.5 2025-12-23 https://www.svone.org/events/npc-qic-legacy-research-proposal-deadline-l6npx-d2rtd monthly 0.5 2025-12-23 https://www.svone.org/events/npc-qic-legacy-research-proposal-deadline-l6npx monthly 0.5 2025-12-23 https://www.svone.org/events/npc-qic-legacy-research-proposal-deadline monthly 0.5 2025-12-23 https://www.svone.org/events/fon-legacy-research-loi-deadline monthly 0.5 2025-12-23 https://www.svone.org/events/spring-virtual-learning-session monthly 0.5 2026-03-20 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/26a27b89-13eb-4f59-80b5-95210b633299/SV-ONE+%282%29.gif Events - 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Spring 2023 Virtual Learning Session - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.svone.org/events/qg51xffzfmgtzaggq2jodz44cexow1 monthly 0.5 2023-03-06 https://www.svone.org/events/dec-2022-action-period-webinar monthly 0.5 2026-03-04 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/0e5eed79-6f9d-4858-a041-d32ba9edf51c/AP+Webinars.png Events - December 15 2022 Action Period Webinar - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.svone.org/events/single-ventricle-connection-chat-october-2022 monthly 0.5 2026-03-04 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/58243f61-2888-4863-b89e-0d3f0ed2f456/FON_SVCC_LiverHealth.png Events - Single Ventricle Connection Chat: Liver Health - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.svone.org/events/educational-webinar-birth-control monthly 0.5 2026-03-04 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/02fb78dc-7557-4c91-9fc5-d06aaa8341ac/FON_EdWebinar_1022.png Events - 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September 2021 Action Period Webinar - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.svone.org/events/heart-university-webinar-medications-in-the-interstage-period-9fk33-xasxc monthly 0.5 2026-03-04 https://www.svone.org/events/heart-university-webinar-medications-in-the-interstage-period-9fk33 monthly 0.5 2026-03-04 https://www.svone.org/events/heart-university-webinar-medications-in-the-interstage-period monthly 0.5 2026-03-04 https://www.svone.org/events/fall-2021-learning-session monthly 0.5 2026-03-04 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1629985042431-2KSFOAYFH6WYIOMS5XHQ/NPCQIC_Fall21_LS.png Events - Fall 2021 Learning Session - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.svone.org/events/spring-2021-learning-session monthly 0.5 2026-03-04 https://www.svone.org/events/action-npc-qic-webinar-mechanical-circulatory-support-strategies-for-interstage-single-ventricle-patients monthly 0.5 2026-03-04 https://www.svone.org/events/dqi762ou0fomwp63src3i9vt01448o monthly 0.5 2026-03-04 https://www.svone.org/events/cnu-virtual-conference-feeding-and-nutrition-in-pediatric-congenital-cardiology monthly 0.5 2026-03-04 https://www.svone.org/events/individuals-with-single-ventricles-day monthly 0.5 2020-10-23 https://www.svone.org/events/test-event-2 monthly 0.5 2020-10-23 https://www.svone.org/news daily 0.75 2026-02-04 https://www.svone.org/news/present-spring-vls monthly 0.5 2026-02-04 https://www.svone.org/news/2026-learning-sessions-announced-and-evolving-our-schedule-based-on-your-feedback monthly 0.5 2026-01-27 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/8821e0ab-d7b6-4e0d-8414-09d7e40d3ad2/FONNPC+Spring+25+VLS+Promo+%288%29.png Network News & Updates - 2026 Learning Sessions Announced and Evolving Our Schedule Based on Your Feedback - Make it stand out Both 2026 Learning Sessions will be virtual, with a return to in-person collaboration in Spring 2027. https://www.svone.org/news/nine-hospitals-on-the-us-news-best-childrens-hospitals-honor-roll-are-members-of-sv-one monthly 0.5 2025-10-30 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/8eaf6fb5-14d3-4bcf-8fd2-22f7fcbf4bf8/SV-ONE+World+Report+Graphics+%284%29.png Network News & Updates - Nine Care Centers on the U.S. News Best Children’s Hospitals Honor Roll Are Members of SV-ONE - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.svone.org/news/welcome-new-single-ventricle-patient-day-committee-members monthly 0.5 2025-07-25 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/893f8153-c8c8-4289-8492-dd4cf116fccb/Jaxten.png Network News & Updates - Welcome New Single Ventricle Patient Day Committee Members! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/2f44fe16-a721-4888-8e01-12a1414c51f9/Scott.png Network News & Updates - Welcome New Single Ventricle Patient Day Committee Members! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.svone.org/news/npc-qic-insights-hub-reporting-site-now-available monthly 0.5 2025-04-04 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/69c0885b-03fd-489b-a456-b21d0472f23c/FON+NPC+Launch+Announcement+Facebook.png Network News & Updates - NPC-QIC Insights Hub Reporting Site Now Available! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.svone.org/news/collection-of-npc-qic-achievements-quality-improvement-efforts-amp-resources-captured-in-new-journey-map monthly 0.5 2025-02-14 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1739569380063-PRR4ET5UN0RC017WKS9S/NPC-QIC+Journey+Map+%288%29.png Network News & Updates - Collection of NPC-QIC Achievements, Quality Improvement Efforts, & Resources Captured in New ‘Journey Map’ https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1739569380198-GS1PE9OK2LPWNOXREQFI/NPC-QIC+Journey+Map+%287%29.png Network News & Updates - Collection of NPC-QIC Achievements, Quality Improvement Efforts, & Resources Captured in New ‘Journey Map’ https://www.svone.org/news/unplanned-reinterventions-toolkit-now-available monthly 0.5 2025-01-24 https://www.svone.org/news/essential-resources-for-parents-on-the-single-ventricle-journey monthly 0.5 2026-03-04 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1d230ca7-385d-423b-9013-f5e710ea0d36/AdobeStock_276366812+%281%29.jpeg Network News & Updates - Essential Resources for Parents on the Single Ventricle Journey - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/f7472db4-3d88-4a63-899b-caa66f45e352/AdobeStock_273946192.jpeg Network News & Updates - 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Milestone Achievement: NPC-QIC Enrolls 6,000 HLHS Babies into its Registry - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/25df24cc-18cd-4cf5-b5fd-de24a009201a/Red+Minimalist+Positive+Quote+Instagram+Post.png Network News & Updates - Milestone Achievement: NPC-QIC Enrolls 6,000 HLHS Babies into its Registry - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.svone.org/news/sbh-spotlight monthly 0.5 2024-01-19 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/320c1f28-3236-44de-888e-ead3fc13195c/Picture4.jpg Network News & Updates - NPC-QIC Partner Spotlight: How Sisters by Heart Connects and Empowers Those Affected by Single Ventricle Heart Disease - Make it stand out The cape and mask included in Sisters by Heart’s Super Fontan care package makes little ones feel like a Fontan Hero. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/c14020f9-d0f5-4f9c-a100-d5dea2af9c64/CP1.jpg Network News & Updates - NPC-QIC Partner Spotlight: How Sisters by Heart Connects and Empowers Those Affected by Single Ventricle Heart Disease - Make it stand out The care packages feature items handpicked by parents of SVHD patients based on their lived experiences to make hospital stays and recovery more comfortable. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/f60f2a27-5d61-435c-a5c7-e7276dfb1066/CP2.jpg Network News & Updates - NPC-QIC Partner Spotlight: How Sisters by Heart Connects and Empowers Those Affected by Single Ventricle Heart Disease - Make it stand out A Fontan-themed coloring book helps young patients relate to their upcoming surgery. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/bd610d09-dfa3-4f89-98f4-8031c829d33f/map%2B%281%29.png Network News & Updates - NPC-QIC Partner Spotlight: How Sisters by Heart Connects and Empowers Those Affected by Single Ventricle Heart Disease - Make it stand out Linked by Heart uses private Facebook groups for each region of the U.S. to connect single ventricle families. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/cc72547d-b31d-4b0f-8971-7c1815ce9ea8/SBH.jpg Network News & Updates - NPC-QIC Partner Spotlight: How Sisters by Heart Connects and Empowers Those Affected by Single Ventricle Heart Disease - Make it stand out www.sistersbyheart.org https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/52e412f4-caeb-468f-85d9-6188ac5c00c2/Picture5.jpg Network News & Updates - NPC-QIC Partner Spotlight: How Sisters by Heart Connects and Empowers Those Affected by Single Ventricle Heart Disease - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.svone.org/news/npc-qic-amp-fon-accepting-one-organization-name-suggestions monthly 0.5 2023-12-13 https://www.svone.org/news/npc-qic-progress-shared-at-8th-world-congress-of-pediatric-cardiology-and-cardiac-surgery-wcpccs monthly 0.5 2023-12-01 https://www.svone.org/news/parent-perspective-holding-my-hlhs-baby monthly 0.5 2026-03-04 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/15dc7e47-3a42-4d0d-9ee7-17d989d373d4/Photo+2.jpg Network News & Updates - Parent Perspective: Holding My HLHS Baby - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/a38b0a68-df65-4c95-83d4-690673b1dbec/Photo+5.jpg Network News & Updates - Parent Perspective: Holding My HLHS Baby - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/68c02452-cbf9-4c3e-b7b8-5d17b8c52929/Photo+4.jpg Network News & Updates - Parent Perspective: Holding My HLHS Baby - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/26099d43-0683-4963-8e5e-cd92a14223e0/Photo+3.jpg Network News & Updates - Parent Perspective: Holding My HLHS Baby - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/a68e559c-dd4d-42c4-99d3-1f428378d13c/Photo+6.jpg Network News & Updates - 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Having the structured program gave us the confidence to take the right steps, and knowing we had our team’s support made it all that much more successful. Josh went from being almost completely tube fed to loving every bite of food and often (almost always!) out-eating his twin brother. Weaning from a feeding tube has given us a sense of freedom and ‘normalcy’ that we are so grateful for.” —Parent, Lurie’s Children’s Hospital https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/b639e3fd-1fb7-4ffd-b1f0-477ca93562b3/TubeWeaningImage1.png Tube Weaning Toolkit - Parent Participation Parent partners ensure improved patient outcomes. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/8ec07318-f2e2-4402-898e-9f0934c92f13/Tube+Weaning+Follow+Up.PNG Tube Weaning Toolkit - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.svone.org/data-security-statement daily 0.75 2026-03-02 https://www.svone.org/research-explained-topics-1 daily 0.75 2026-01-23 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1740768773013-1UGDZ5MME9TXTB8H6L5V/unsplash-image-87ev1NvhDsU.jpg https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1740768814314-3RZQBXUUEK5G0N2Q0NF3/image-asset.jpeg https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1739569768417-1KFUMYY1MDRDMTYWQENU/AdobeStock_100960706.jpeg https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1740769363640-XERM14SQT9M1BOBGZWTQ/unsplash-image-oko_4WnoM98.jpg https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1740769401473-2C95A6YXGTOUSMJR0L2R/image-asset.jpeg https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1740769452765-G253D6J3USMDS88PHWQH/unsplash-image-Uvlir2v-dXE.jpg https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1740769475850-T0UDGKNVRXZ08YYQWYEP/unsplash-image-YTQQYQ6_g1s.jpg https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1751381291937-RC1RH2JEBI3TASG4CI2P/unsplash-image-LhNkJMayglI.jpg https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1744219394067-ODEVQGZ0A0B0AFU0GH98/unsplash-image-KJE--xk4AWE.jpg https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1740769571916-BSIMQTOCEI4W9A77MDY6/unsplash-image-uZfwTsrXZjw.jpg https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1740769606616-ZBBQKG4O1Y7MZQSWBV38/unsplash-image-uld7AdE36z4.jpg https://www.svone.org/care-centers-directory-1 daily 0.75 2025-11-05 https://www.svone.org/home daily 1.0 2026-02-23 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/53083173-e48f-45be-88df-cb3178b4ffc5/SV-ONE+Headers+%281000+x+300+px%29+%289%29.png Home (SV-ONE) - 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out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1736865716532-6UW8KVGOTZZ5CTFY7AZU/AdobeStock_191968034.jpeg Care Center Tools & Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/5ffb800d-2245-4e59-a7b1-f86a4e2b4422/AdobeStock_125020403.jpeg Care Center Tools & Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/99c3d689-16ca-4a3b-b7bb-e3b5463e6dd8/GrossMotor2.jpg Care Center Tools & Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/2a44a4d2-2f9b-4042-9e9c-d099fb7b5349/AdobeStock_41428387.jpeg Care Center Tools & Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/aaaba46f-99e2-413e-a907-a075f047050f/2393+Ari+Simmons+20220926.jpg Care Center Tools & Resources https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/f7daa30f-5bf4-4351-a616-ceb6abb25b2d/image-asset.jpg Care Center Tools & Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/ad9c4d6c-49c3-4f48-bf55-2087ec98abf7/AdobeStock_285409683.jpeg Care Center Tools & Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1750902556238-H33OOUB9BBEZO62IVXOA/unsplash-image-9PwLeZA-RGc.jpg Care Center Tools & Resources - Make it stand out QI RESOURCES https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1750902684857-I8N370FDIQDWUSVDUGX5/unsplash-image-smgTvepind4.jpg Care Center Tools & Resources - Make it stand out CASE REVIEW CONFERENCES https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1610402890238-SFLBFRKBHZF5KNRIFIL6/HeartUniversity_SavetheDatesFULL.png Care Center Tools & Resources https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1620317195852-OYVETA533Z29DF86GR66/OpenSchool.PNG Care Center Tools & Resources https://www.svone.org/our-network-1 daily 0.75 2026-03-02 https://www.svone.org/quality-improvement-1 daily 0.75 2025-07-30 https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1596730175300-OTR8EE4OPP0X3MVPQOAZ/image-asset.jpeg Quality Improvement https://images.squarespace-cdn.com/content/v1/5e8e4cdc4eebc8406b703e41/1603466541285-CPXBL2LUS7TQK3VAHI48/OverallImprovementFramework.jpg Quality Improvement 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