SV-ONE envisions a future where all affected by single ventricle heart disease can thrive and live long, fulfilling lives.

WELCOME TO SV-ONE

 

SPOTLIGHT

Thanks for attending our Spring 2025 Learning Session!

 

Beginning with 35 care center teams at the first Learning Session in 2009, the journey map showcases how NPC-QIC has grown into a network of 69 pediatric cardiology centers spanning three countries. It underscores key milestones such as the creation of the largest known registry of infants with HLHS, now with over 6,000 enrolled, and the publication of more than 84 shared learnings.

 

U.S. News & World Report recently ranked 50 centers in pediatric cardiology care. Of the top 25 recognized hospitals, 20 care centers are members of the NPC-QIC.

By sharing their clinical stories, these 6,000 babies have taught us how to improve our practice and inspired us to continue our journey to transform the care of people with single ventricle congenital heart disease.
— Dr. Alicia Chaves, NPC-QIC clinical data co-lead.

GET INVOLVED

ABOUT OUR NETWORK

PATIENTS & FAMILIES

PROSPECTIVE CENTERS & HEALTHCARE PROFESSIONALS


NEWS & HIGHLIGHTS

UPCOMING EVENTS


SOCIAL MEDIA FEED

SPOTLIGHT


Clinicians and parents of HLHS babies share their perspective on the “Heart of the Matter.”