OUR NETWORK

About SV-ONE

The Single Ventricle Outcomes NEtwork (SV-ONE), is a learning health network dedicated to transforming outcomes for individuals living with single ventricle heart disease across the lifespan. SV-ONE represents an evolution of two previous learning networks, the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) and Fontan Outcomes Network (FON). 

As a part of SV-ONE, members contribute to improving long term outcomes and quality of life for patients through advanced data entry, innovative research, network-wide quality improvement projects, and collaboration.

Vision: SV-ONE envisions a future where all affected by single ventricle heart disease can thrive and live long, fulfilling lives. 

Mission: SV-ONE’s mission is to build a connected community, accelerate discovery, transform care, & improve single ventricle heart disease outcomes across the lifespan. 

Guiding Principles: 

  • Center the patient & family in all that we do 

  • Embrace whole-patient health, including psychosocial & emotional needs 

  • Ensure broad representation & elevate voices from diverse expertise & experiences 

  • Design, measure, & promote equity in all our endeavors 

  • Collect accurate, timely data to power impactful improvement & research 

  • Support & empower clinicians 

Key Benefits To Membership 

By joining SV-ONE, care centers will become part of a transformative legacy. Our quality improvement projects, ranging from first year of life interventions to optimizing physical activity and liver health, aim to address the complex challenges related to single ventricle heart disease, including reducing unplanned reinterventions, addressing neurodevelopment, improving liver health, and promoting physical activity and exercise. 

  • SV-ONE patients have the potential for improved outcomes and reduced mortality through the implementation of techniques and processes shared amongst our care center teams. 

  • SV-ONE remains committed to satisfying US News and World Report’s criteria for participating in an externally audited, national quality-improvement research network. 

  • Opportunities to connect and collaborate with Pediatric and Adult Congenital Cardiology experts across the country. 

  • Access to registry data which may be used for clinical and quality improvement research has resulted in over 46 publications. 

  • SV-ONE teams can receive training in Improvement Science principles and techniques that also apply to many other clinical and business processes. 

  • Physician and nurse attendees at SV-ONE Learning Sessions may be eligible for Continuing Education credits.   

  • SV-ONE activities may align or satisfy your institutional initiatives for quality and patient safety. 

The following specialists are eligible for meeting requirements to receive credit towards Maintenance of Certification through participation in SV-ONE activities: 

  • Developmental-Behavioral Pediatrics (ABP) 

  • General Pediatrics (ABP) 

  • Neonatal-Perinatal Medicine (ABP) 

  • Neurodevelopmental Disabilities (ABP or ABPN) 

  • Pediatric Cardiology (ABP) 

  • Pediatric Critical Care Medicine (ABP) 

  • Pediatric Surgery (and fetal surgery) (ABS) 

  • Congenital Cardiac Surgery (ABTS) 

  • Obstetrics, Maternal and Fetal Medicine (ABOG)

If you would like more information about joining SV-ONE, please reach out to info@svone.org. 

Healthier Together: What is a Learning Health Network?

Learn more about learning networks, how they work, the learning health systems model, and more via the video below.