GET INVOLVED

Are you a person with or the family member of a child with single ventricle heart disease interested in SV-ONE? Chances are your child's hospital or care center may already be a participating member.

Don't see your care center on our list?  Ask how you and your care team can get involved at your child’s next clinic visit. And, even if your child’s care center isn’t a participating center, you can still participate!  Ask how at info@svone.org.

Are you looking for more information on how you can support your child? Check out our parent partner organization, Sisters by Heart, or find additional tools and information on our Resources & Support page.

Ways to Get Involved

SV-ONE Newsletter

Subscribe to our monthly newsletter to keep up with important announcements and upcoming events.

Nominate a #HeartHero

Nominate a Heart Hero for a special spotlight on our website and social media pages.

Follow Us on Social Media

Are you engaged with us on social media? Become part of our online community of Facebook, Instagram, and LinkedIn.

Attend a Case Review Conference

During Case Review Conferences, care centers share learnings and expertise during through highly clinical patient-based case presentations and discussion.

Attend a Learning Session

Our next Fall Learning Session is on October 10-11, 2025, in Indianapolis, Indiana! Additional details will be available soon.

Learning Sessions take place twice per year in the Spring (fully virtual) and Fall (in-person and virtual).

Join in on Single Ventricle Patient Day

Single Ventricle Patient Day is an exciting event, usually taking place during our Fall Learning Session, created by patients for patients featuring informational programming surrounding mental health, family planning, transplant and devices, exercise, and more.

Additional details about the 2025 Single Ventricle Patient Day will be shared soon!

Participate in a Research Study

The Research Bulletin Board lists opportunities to participate in research studies within the SV-ONE community.