RESEARCH OVERVIEW
Participating in Research
The Research Workgroup is responsible for monitoring research projects that utilize SV-ONE registry data. The workgroup is responsible for reviewing research proposals submitted by members of the network, providing design and analyses feedback, and making recommendations regarding acceptance of research proposals.
Research Publications
Research Explained
Since October 2013, parents on the Research Workgroup have helped select research studies that are important and relevant to families. For each selected study, they create a "Research Explained" summary—an easy-to-understand version that explains the medical research in simple, clear language.
These summaries highlight what the research found and why it matters. For example, a February 2015 summary explained a study showing that children with HLHS may have developmental delays by age 3 compared to other children.
"Research Explained" is a great example of how families and the cardiology community work together to make medical information more accessible and meaningful.
Research Explained Committee Members
Clinician Members
Lead: Clifford Cua, Nationwide Children’s Hospital; Specialty: Imaging
Thomas Blount, Children’s Hospital & Medical Center, Omaha; Specialty: Imaging
Christopher Curzon, Children’s Hospital & Medical Center, Omaha; Specialty: Catheterization
Matthew Moehlman, Advocate Children's Hospital; Specialty: Imaging
Sarah Plummer, University Hospitals Rainbow Babies & Children’s Hospital; Specialty: Imaging
Harish Rudra, Inova Children’s Hospital; Specialty: Imaging
Jason Williams, Duke Children’s Hospital; Specialty: Imaging
Parent Members