JOIN SV-ONE

Collaborating to Improve Outcomes for Patients with Single Ventricle Heart Disease  

SV-ONE is an international quality improvement and research collaborative focused on transforming care and outcomes for individuals living with single ventricle heart disease (SVHD). Through structured collaboration, shared data, and best-practice implementation, we empower cardiology care teams to improve outcomes across the patient lifespan—from early surgical interventions through adult Fontan care.

 Why Join?  

Care for patients with single ventricle physiology is complex and evolving. SV-ONE provides your center with the infrastructure, tools, and collaborative network to:  

  • Improve clinical outcomes through data-driven quality improvement  

  • Benchmark performance against peer institutions  

  • Share and adopt best practices for Fontan and SVHD care  

  • Access real-time, actionable data to guide decision-making  

  • Collaborate on multi-center research and QI projects  

  • Enhance longitudinal care for pediatric and adult SVHD patients  

  • Help overcome the limitations of low individual center volumes by aggregating learning and experience across sites.

What You’ll Gain  

Participating centers benefit from:  

  • A HIPAA-compliant data platform for QI and research  

  • Regular network-wide learning sessions and webinars  

  • QI coaching and implementation support for center-based initiatives  

  • Access to shared resources including toolkits, change packages, and patient education tools  

  • Opportunities to collaborate on publications and presentations  

  • A community of peers committed to continuous improvement in single ventricle care  

Who Should Join?  

We welcome cardiology care centers that are committed to improving outcomes for patients with single ventricle heart disease, whether your center sees a few or many single ventricle patients, your insights and engagement are critical to the network’s success. Our existing care centers feature: 

  • Pediatric and adult congenital heart programs

  • Individuals with single ventricle heart disease and their families   

  • Cardiologists, surgeons, nurse practitioners, and care coordinators  

  • QI leaders, data managers, and clinical researchers  


How to Join  

Enrollment takes place on an annual basis. Becoming a participating center is straightforward:  

  • Reach Out – Contact the SV-ONE team.  

  • Learn More – Join an informational session to discuss network goals, participation requirements and fees, and onboarding.  

  • Get Started – Receive our welcome toolkit, data access instructions, and QI onboarding support.  

We provide the tools and support; you bring the commitment to improvement.