PUBLICATIONS
The Research and Publications Committee is responsible for monitoring research projects that utilize SV-ONE registry data. The committee is responsible for reviewing research proposals, abstracts, and manuscripts submitted by members of the network, providing design and analyses feedback to network manuscript authors, and making recommendations regarding acceptance of research proposals.
2025 Publications
Evaluating Vocal Cord Dysfunction in Infants Following the Norwood Operation: A National Pediatric Cardiology Quality Improvement Collaborative Analysis
Hashim, L., Chaves, A., Conaway, M., & Vergales, J. (2025). Evaluating Vocal Cord Dysfunction in Infants Following the Norwood Operation: A National Pediatric Cardiology Quality Improvement Collaborative Analysis. Pediatric Cardiology. https://doi.org/10.1007/s00246-025-03919-0
2024 Publications
The NEONATE score predicts freedom from interstage mortality or transplant in a modern cohort
Ahmed, H., Anderson, J. B., Bates, K. E., Lannon, C. M., & Brown, D. W. (2024). The NEONATE score predicts freedom from interstage mortality or transplant in a modern cohort [Article]. Cardiology in the Young, 34(5), 981-988. https://doi.org/10.1017/S1047951123003542
Assessing enrollment of eligible infants in the national pediatric cardiology quality improvement collaborative (NPC-QIC) through linkage to the pediatric cardiac critical care consortium (PC4) registry
Bates, K. E., Donohue, J., Zhang, W., Mikesell, K., Anderson, J. B., Bingler, M., Brown, D. W., Gaies, M. G., Ghanayem, N., Lambert, L. M., Pasquali, S. K., Schidlow, D., Vergales, J., & Schumacher, K. R. (2024). Assessing enrollment of eligible infants in the national pediatric cardiology quality improvement collaborative (NPC-QIC) through linkage to the pediatric cardiac critical care consortium (PC4) registry [Article]. Cardiology in the Young, 34(2), 373-379. https://doi.org/10.1017/S1047951123001671
Risk Factors for Death or Transplant After Stage 2 Palliation for Single Ventricle Heart Disease
Bucholz, E. M., Lu, M., Sleeper, L., Vergales, J., Bingler, M. A., Ronai, C., Anderson, J. B., Bates, K. E., Lannon, C., Reynolds, L., & Brown, D. W. (2024). Risk Factors for Death or Transplant After Stage 2 Palliation for Single Ventricle Heart Disease [Article]. Jacc Advances, 3(5), Article 100934. https://doi.org/10.1016/j.jacadv.2024.100934
Achieving an Optimal Outcome After Stage 1 Palliation for Hypoplastic Left Heart Syndrome and Variants: Frequency, Associated Factors, and Subsequent Outcomes
Shalhoub, K., Heydarian, H. C., Hanke, S. P., Cnota, J. F., Stein, L. H., Tepe, B., & Hill, G. D. (2024). Achieving an Optimal Outcome After Stage 1 Palliation for Hypoplastic Left Heart Syndrome and Variants: Frequency, Associated Factors, and Subsequent Outcomes [Article]. Journal of the American Heart Association, 13(12), Article e032055. https://doi.org/10.1161/JAHA.123.032055
Structured Tube Weaning Using the Hunger Provocation Method in Infants with Single Ventricle Heart Defects: A Multicenter Study
Wong J, Loomba R, Allen KY, et al. Structured Tube Weaning Using the Hunger Provocation Method in Infants with Single Ventricle Heart Defects: A Multicenter Study. Pediatr Cardiol. Published online June 24, 2024. doi:10.1007/s00246-024-03558-x
Childhood Opportunity and Acute Interstage Outcomes: A National Pediatric Cardiology Quality Improvement Collaborative Analysis
Zielonka, B., Bucholz, E. M., Lu, M., Bates, K. E., Hill, G. D., Pinto, N. M., Sleeper, L. A., & Brown, D. W. (2024). Childhood Opportunity and Acute Interstage Outcomes: A National Pediatric Cardiology Quality Improvement Collaborative Analysis [Article]. Circulation, 150(3), 190-202. https://doi.org/10.1161/CIRCULATIONAHA.124.069127
2023 Publications
Cumulative comorbid conditions influence mortality risk after staged palliation for hypoplastic left heart syndrome and variants
Backes, E. R., Afonso, N. S., Guffey, D., Tweddell, J. S., Tabbutt, S., Rudd, N. A., O'Harrow, G., Molossi, S., Hoffman, G. M., Hill, G., Heinle, J. S., Bhat, P., Anderson, J. B., & Ghanayem, N. S. (2023). Cumulative comorbid conditions influence mortality risk after staged palliation for hypoplastic left heart syndrome and variants [Conference Paper]. Journal of Thoracic and Cardiovascular Surgery, 165(1), 287-298.e284. https://doi.org/10.1016/j.jtcvs.2022.01.056
Factors associated with morbidity, mortality, and hemodynamic failure after biventricular conversion in borderline hypoplastic left hearts
Beattie MJ, Sleeper LA, Lu M, et al. Factors associated with morbidity, mortality, and hemodynamic failure after biventricular conversion in borderline hypoplastic left hearts. J Thorac Cardiovasc Surg. 2023;166(3):933-942.e3. doi:10.1016/j.jtcvs.2023.01.018
Hybrid vs. Norwood: Analysis of the NPC-QIC Database to Determine Optimal Approach for High-Risk Single Ventricle Patients
Callahan CP, Miller P, Carvajal H, Canter M, Mannie C, Wan F, Hill GD, Eghtesady P. Hybrid vs. Norwood: Analysis of the NPC-QIC Database to Determine Optimal Approach for High-Risk Single Ventricle Patients. Circulation. 2023;148.
Hospital resource utilization in a national cohort of functionally single ventricle patients undergoing surgical treatment
Dan-Mihai Dorobantu, Qi Huang, Ferran Espuny Pujol, Katherine L. Brown, Rodney C. Franklin, Maria Pufulete, Deborah A. Lawlor, Sonya Crowe, Christina Pagel, Serban C. Stoica,Hospital resource utilization in a national cohort of functionally single ventricle patients undergoing surgical treatment, JTCVS Open, Volume 14,2023, Pages 441-461, ISSN 2666-2736.
Patterns of Breastfeeding and Human Milk Feeding in Infants with Single-Ventricle Congenital Heart Disease: A Population Study of the National Pediatric Cardiology Quality Improvement Collaborative Registry
Elgersma, K. M., Spatz, D. L., Fulkerson, J. A., Wolfson, J., Georgieff, M. K., Looman, W. S., Shah, K. M., Uzark, K., & McKechnie, A. C. (2023). Patterns of Breastfeeding and Human Milk Feeding in Infants with Single-Ventricle Congenital Heart Disease: A Population Study of the National Pediatric Cardiology Quality Improvement Collaborative Registry [Article]. Breastfeeding Medicine, 18(4), 315-325. https://doi.org/10.1089/bfm.2023.0036
Human Milk Feeding and Direct Breastfeeding Improve Outcomes for Infants With Single Ventricle Congenital Heart Disease: Propensity Score-Matched Analysis of the NPC-QIC Registry
Elgersma, K. M., Wolfson, J., Fulkerson, J. A., Georgieff, M. K., Looman, W. S., Spatz, D. L., Shah, K. M., Uzark, K., & McKechnie, A. C. (2023a). Human Milk Feeding and Direct Breastfeeding Improve Outcomes for Infants With Single Ventricle Congenital Heart Disease: Propensity Score-Matched Analysis of the NPC-QIC Registry [Article]. Journal of the American Heart Association, 12(17), Article e030756. https://doi.org/10.1161/JAHA.123.030756
Predictors of Human Milk Feeding and Direct Breastfeeding for Infants with Single Ventricle Congenital Heart Disease: Machine Learning Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Registry
Elgersma, K. M., Wolfson, J., Fulkerson, J. A., Georgieff, M. K., Looman, W. S., Spatz, D. L., Shah, K. M., Uzark, K., & McKechnie, A. C. (2023b). Predictors of Human Milk Feeding and Direct Breastfeeding for Infants with Single Ventricle Congenital Heart Disease: Machine Learning Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Registry [Article]. Journal of Pediatrics, 261, Article 113562. https://doi.org/10.1016/j.jpeds.2023.113562
Center-level factors associated with shorter length of stay following stage 1 palliation: An analysis of the national pediatric cardiology quality improvement collaborative registry
Foote, H. P., Thibault, D., Gonzalez, C. D., Hill, G. D., Minich, L. L., Overbey, D. M., Tallent, S. L., Hill, K. D., & McCrary, A. W. (2023). Center-level factors associated with shorter length of stay following stage 1 palliation: An analysis of the national pediatric cardiology quality improvement collaborative registry [Article]. American Heart Journal, 265, 143-152. https://doi.org/10.1016/j.ahj.2023.08.003
Impact of Reintervention During Stage 1 Palliation Hospitalization: A National, Multicenter Study
Handler, S. S., Chan, T., Ghanayem, N. S., Rudd, N., Wright, G., Visotcky, A., Sparapani, R., Mitchell, M. E., Hoffman, G. M., & Frommelt, M. A. (2023). Impact of Reintervention During Stage 1 Palliation Hospitalization: A National, Multicenter Study [Article]. Annals of Thoracic Surgery, 115(4), 975-981. https://doi.org/10.1016/j.athoracsur.2022.10.014
Association of Digoxin Use With Transplant-Free Interstage Survival in Infants Palliated With a Stage 1 Hybrid Procedure
Reddy, R. K., Zyblewski, S. C., Chowdhury, S. M., Godown, J., Bradley, S. M., Brown, D. W., Duncan, R. K., Brown, T. N., Bates, K. E., Minich, L. L., & Costello, J. M. (2023). Association of Digoxin Use With Transplant-Free Interstage Survival in Infants Palliated With a Stage 1 Hybrid Procedure [Article]. Journal of the American Heart Association, 12(20), Article e029521. https://doi.org/10.1161/JAHA.123.029521
The Prevalence of Congenital Anomalies of the Airway or Lung in Infants with Hypoplastic Left Heart Syndrome and Differences in Midterm Outcomes: A National Pediatric Cardiology Quality Improvement Collaborative Registry Analysis
Sahulee, R., Singh, R. K., & Pasternack, D. M. (2023). The Prevalence of Congenital Anomalies of the Airway or Lung in Infants with Hypoplastic Left Heart Syndrome and Differences in Midterm Outcomes: A National Pediatric Cardiology Quality Improvement Collaborative Registry Analysis [Article]. Pediatric Cardiology, 44(1), 86-94. https://doi.org/10.1007/s00246-022-02949-2
Machine Learning to Predict Interstage Mortality Following Single Ventricle Palliation: A NPC-QIC Database Analysis
Sunthankar, S. D., Zhao, J., Wei, W. Q., Hill, G. D., Parra, D. A., Kohl, K., McCoy, A., Jayaram, N. M., & Godown, J. (2023). Machine Learning to Predict Interstage Mortality Following Single Ventricle Palliation: A NPC-QIC Database Analysis [Article]. Pediatric Cardiology, 44(6), 1242-1250. https://doi.org/10.1007/s00246-023-03130-z
Increasing Use of the Right Ventricle-to-Pulmonary Artery Shunt for Stage 1 Palliation
Wirth, S. H., Heydarian, H. C., Marcuccio, E., Tepe, B. E., Stein, L. H., & Hill, G. D. (2023). Increasing Use of the Right Ventricle-to-Pulmonary Artery Shunt for Stage 1 Palliation [Conference Paper]. Annals of Thoracic Surgery, 115(5), 1229-1236. https://doi.org/10.1016/j.athoracsur.2021.12.040
Social Determinants of Health and Acute Interstage Outcomes: An NPC-QIC Analysis
Zielonka B, Bucholz EM, Lu M, Bates K, Hill GD, Pinto NM, Sleeper LA, Brown DW. Social determinants of health and acute interstage outcomes: An NPC-QIC analysis. Circulation. 2023;148.
2022 Publications
Digoxin Associated With Greater Transplant-Free Survival in High- vs Low-Risk Interstage Patients
Brown, T. N., Brown, D. W., Tweddell, J. S., Bates, K. E., Lannon, C. M., & Anderson, J. B. (2022). Digoxin Associated With Greater Transplant-Free Survival in High- vs Low-Risk Interstage Patients [Conference Paper]. Annals of Thoracic Surgery, 114(4), 1453-1459. https://doi.org/10.1016/j.athoracsur.2021.08.082
Predictors and Outcomes of Arrhythmia on Stage I Palliation of Single Ventricle Patients
Czosek, R. J., Spar, D. S., Anderson, J. B., Khoury, P. R., & Webster, G. (2022). Predictors and Outcomes of Arrhythmia on Stage I Palliation of Single Ventricle Patients [Article]. Jacc Clinical Electrophysiology, 8(9), 1136-1144. https://doi.org/10.1016/j.jacep.2022.06.010
Socioeconomic Impact on Outcomes During the First Year of Life of Patients with Single Ventricle Heart Disease: An Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Registry
De Loizaga, S. R., Schneider, K., Beck, A. F., Zang, H., Ollberding, N., Tweddell, J. S., & Anderson, J. B. (2022). Socioeconomic Impact on Outcomes During the First Year of Life of Patients with Single Ventricle Heart Disease: An Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Registry [Article]. Pediatric Cardiology, 43(3), 605-615. https://doi.org/10.1007/s00246-021-02763-2
Factors Associated with Inability to Discharge After Stage 1 Palliation for Single Ventricle Heart Disease: An Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Database
Luna, A. O., Kuhnell, P., Wooton, S., Handler, S. S., Wright, G., Hammel, J., Tweddell, J. S., & Chan, T. (2022). Factors Associated with Inability to Discharge After Stage 1 Palliation for Single Ventricle Heart Disease: An Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Database [Article]. Pediatric Cardiology, 43(6), 1298-1310. https://doi.org/10.1007/s00246-022-02852-w
Birth Location in Infants with Prenatally Diagnosed Hypoplastic Left Heart Syndrome
Patel, M., Yu, S., Romano, J. C., Bates, K., Uzark, K., Schumacher, K., Balasubramanian, S., & Gelehrter, S. (2022). Birth Location in Infants with Prenatally Diagnosed Hypoplastic Left Heart Syndrome [Article]. Pediatric Cardiology, 43(2), 301-307. https://doi.org/10.1007/s00246-021-02721-y
Increased interstage morbidity and mortality following stage 1 palliation in patients with genetic abnormalities
Pierick, A. R., Pierick, T. A., Scholz, T. D., Zimmerman, M. B., & Reinking, B. E. (2022). Increased interstage morbidity and mortality following stage 1 palliation in patients with genetic abnormalities [Article]. Cardiology in the Young, 32(12), 1999-2004. https://doi.org/10.1017/S1047951122000166
Feeding challenges in the newborn with congenital heart disease
Ravishankar, C. (2022). Feeding challenges in the newborn with congenital heart disease [Review]. Current Opinion in Pediatrics, 34(5), 463-470. https://doi.org/10.1097/MOP.0000000000001162
Assessing the Association Between Pre-operative Feeding and the Development of Oral Feeding Skills in Infants with Single Ventricle Heart Disease: An Analysis of the NPC-QIC Dataset
Sagiv, E., Tjoeng, Y. L., Davis, M., Keenan, E., Fogel, J., Fogg, K., Slater, N., Prochaska-Davis, S., Frontier, K. D., Fridgen, J., & Chan, T. (2022). Assessing the Association Between Pre-operative Feeding and the Development of Oral Feeding Skills in Infants with Single Ventricle Heart Disease: An Analysis of the NPC-QIC Dataset [Article]. Pediatric Cardiology, 43(5), 1141-1155. https://doi.org/10.1007/s00246-022-02837-9
2021 Publications
Characteristics of Interstage Death After Discharge from Stage I Palliation
Ahmed, H., Anderson, J. B., Bates, K. E., Natarajan, S., Ghanayem, N. S., Lannon, C. M., & Brown, D. W. (2021). Characteristics of Interstage Death After Discharge from Stage I Palliation [Article]. Pediatric Cardiology, 42(6), 1372-1378. https://doi.org/10.1007/s00246-021-02621-1
Predictors and outcomes of heart block during surgical stage I palliation of patients with a single ventricle: A report from the NPC-QIC
Czosek, R. J., Anderson, J. B., Baskar, S., Khoury, P. R., Jayaram, N., & Spar, D. S. (2021). Predictors and outcomes of heart block during surgical stage I palliation of patients with a single ventricle: A report from the NPC-QIC [Article]. Heart Rhythm, 18(11), 1876-1883. https://doi.org/10.1016/j.hrthm.2021.05.019
Impact of Digoxin Use on Interstage Outcomes of Single Ventricle Heart Disease: From a NPC-QIC Registry Analysis
Klausner, R. E., Parra, D., Kohl, K., Brown, T., Hill, G. D., Minich, L., & Godown, J. (2021). Impact of Digoxin Use on Interstage Outcomes of Single Ventricle Heart Disease (From a NPC-QIC Registry Analysis) [Article]. American Journal of Cardiology, 154, 99-105. https://doi.org/10.1016/j.amjcard.2021.05.048
Poor Weight Recovery Between Stage 1 Palliation and Hospital Discharge for Infants with Single Ventricle Physiology: An Analysis of the NPC-QIC Phase II Dataset
Moza, R., Truong, D. T., Lambert, L. M., Ou, Z., Amula, V., Eckhauser, A., Minich, L. L., & Williams, R. V. (2021). Poor Weight Recovery Between Stage 1 Palliation and Hospital Discharge for Infants with Single Ventricle Physiology: An Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Phase II Dataset [Conference Paper]. Journal of Pediatrics, 234, 20-26.e22. https://doi.org/10.1016/j.jpeds.2021.03.035
A word on netting of angiotensin-converting enzyme inhibitor therapy in hypoplastic left heart syndrome following stage-I
Schranz D, Krasemann T. A word on netting of angiotensin-converting enzyme inhibitor therapy in hypoplastic left heart syndrome following stage-I. Cardiology in the Young. 2021 Aug 1; 31(8):1323–6. Available from: https://pubmed.ncbi.nlm.nih.gov/34318741/
Changes in Provider Prescribing Behavior for Infants with Single Ventricle Physiology After Evidence-Based Publications
Weyhrauch, D. L., Truong, D. T., Pinto, N. M., Amula, V., Lambert, L. M., Zhang, C., Presson, A. P., Wilkes, J., Minich, L. L. A., & Williams, R. V. (2021). Changes in Provider Prescribing Behavior for Infants with Single Ventricle Physiology After Evidence-Based Publications [Article]. Pediatric Cardiology, 42(5), 1224-1232. https://doi.org/10.1007/s00246-021-02606-0
2020 Publications
Development of a validated risk score for interstage death or transplant after stage I palliation for single-ventricle heart disease
Ahmed, H., Anderson, J. B., Bates, K. E., Fleishman, C. E., Natarajan, S., Ghanayem, N. S., Sleeper, L. A., Lannon, C. M., & Brown, D. W. (2020). Development of a validated risk score for interstage death or transplant after stage I palliation for single-ventricle heart disease [Article]. Journal of Thoracic and Cardiovascular Surgery, 160(4), 1021-1030. https://doi.org/10.1016/j.jtcvs.2019.11.001
The Fontan outcomes network: first steps towards building a lifespan registry for individuals with Fontan circulation in the United States
Alsaied, T., Allen, K. Y., Anderson, J. B., Anixt, J. S., Brown, D. W., Cetta, F., Cordina, R., D'Udekem, Y., Didier, M., Ginde, S., Di Maria, M. V., Eversole, M., Goldberg, D., Goldstein, B. H., Hoffmann, E., Kovacs, A. H., Lannon, C., Lihn, S., Lubert, A. M., . . . Schumacher, K. (2020). The Fontan outcomes network: first steps towards building a lifespan registry for individuals with Fontan circulation in the United States. Cardiology in the Young, 30(8), 1070-1075. https://doi.org/10.1017/S1047951120001869
Digoxin Is Associated With Improved Transplant-Free Interstage Survival in Highrisk but Not Low-Risk Patients With Hypoplastic Left Heart Syndrome (HLHS)
Brown, T; Brown, D; Tweddell, J S; Bates, K; Lannon, C; Anderson, J. (2020). Digoxin Is Associated With Improved Transplant-Free Interstage Survival in Highrisk but Not Low-Risk Patients With Hypoplastic Left Heart Syndrome (HLHS). Journal of the American College of Cardiology, Volume 75, Issue 11.
Arch intervention following stage 1 palliation in hypoplastic left heart syndrome is associated with slower feed advancement: A report from the National Pediatric Quality Cardiology Improvement Collaborative
Chaves, A. H., Baker-Smith, C. M., & Rosenthal, G. L. (2020). Arch intervention following stage 1 palliation in hypoplastic left heart syndrome is associated with slower feed advancement: A report from the National Pediatric Quality Cardiology Improvement Collaborative [Article]. Cardiology in the Young, 30(3), 396-401. https://doi.org/10.1017/S1047951120000177
Angiotensin-converting enzyme inhibitor prescription for patients with single ventricle physiology enrolled in the NPC-QIC registry
Hansen, J. E., Brown, D. W., Hanke, S. P., Bates, K. E., Tweddell, J. S., Hill, G., & Anderson, J. B. (2020). Angiotensin-converting enzyme inhibitor prescription for patients with single ventricle physiology enrolled in the NPC-QIC registry [Article]. Journal of the American Heart Association, 9(10), Article e014823. https://doi.org/10.1161/JAHA.119.014823
Improved National Outcomes Achieved in a Cardiac Learning Health Collaborative Based on Early Performance Level
Hill, G. D., Bingler, M., McCoy, A. B., Oster, M. E., Uzark, K., & Bates, K. E. (2020). Improved National Outcomes Achieved in a Cardiac Learning Health Collaborative Based on Early Performance Level [Article]. Journal of Pediatrics, 222, 186-192.e181. https://doi.org/10.1016/j.jpeds.2020.03.014
Provider perspective on the role of palliative care in hypoplastic left heart syndrome
Lowenstein, S., MacAuley, R., Perko, K., & Ronai, C. (2020). Provider perspective on the role of palliative care in hypoplastic left heart syndrome [Article]. Cardiology in the Young, 30(3), 377-382. https://doi.org/10.1017/S1047951120000128
2019 Publications
Power of a Learning Network in Congenital Heart Disease
Anderson, J. B., Brown, D. W., Lihn, S., Mangeot, C., Bates, K. E., Van Bergen, A. H., Rudd, N. A., Hanke, S., Tweddell, J., & Lannon, C. (2019). Power of a Learning Network in Congenital Heart Disease [Article]. World Journal for Pediatric and Congenital Heart Surgery, 10(1), 66-71. https://doi.org/10.1177/2150135118815023
Identifying best practices in interstage care: using a positive deviance approach within the National Pediatric Cardiology Quality Improvement Collaborative
Bates, K. E., Yu, S., Mangeot, C., Shea, J. A., Brown, D. W., & Uzark, K. (2019). Identifying best practices in interstage care: Using a positive deviance approach within the National Pediatric Cardiology Quality Improvement Collaborative [Article]. Cardiology in the Young, 29(3), 398-407. https://doi.org/10.1017/S1047951118002548
Outcomes Associated With Unplanned Interstage Cardiac Interventions After Norwood Palliation
Castellanos, D. A., Ocampo, E. C., Gooden, A., Wang, Y., Qureshi, A. M., Heinle, J. S., Mery, C. M., Hill, G. D., & Ghanayem, N. S. (2019). Outcomes Associated With Unplanned Interstage Cardiac Interventions After Norwood Palliation [Conference Paper]. Annals of Thoracic Surgery, 108(5), 1423-1429. https://doi.org/10.1016/j.athoracsur.2019.06.041
Feeding methods for infants with single ventricle physiology are associated with length of stay during stage 2 surgery hospitalization
Hoch, J. M., Fatusin, O., Yenokyan, G., Thompson, W. R., & Lefton-Greif, M. A. (2019). Feeding methods for infants with single ventricle physiology are associated with length of stay during stage 2 surgery hospitalization [Article]. Congenital Heart Disease, 14(3), 438-445. https://doi.org/10.1111/chd.12742
IMPACT Registry and National Pediatric Cardiology Quality Improvement Collaborative: Contributions to Quality in Congenital Heart Disease
Martin, G. R., Anderson, J. B., & Vincent, R. N. (2019). IMPACT Registry and National Pediatric Cardiology Quality Improvement Collaborative: Contributions to Quality in Congenital Heart Disease [Article]. World Journal for Pediatric and Congenital Heart Surgery, 10(1), 72-80. https://doi.org/10.1177/2150135118815059
Abstract 15924: Interstage Monitoring is Associated With Greater Weight Gain and Oxygen Saturation Over Time: A Longitudinal Analysis of National Pediatric Cardiology-Quality Improvement Collaborative Phase 1 Data
Meza, J M; Blackstone, E H; Jajeswaran, J; Andersen, N D; LoTurco, H; McCrindle, B W; Guleserian, K J; Karamlou, T; Hill, G D; Turek, J W. (2019). Abstract 15924: Interstage Monitoring is Associated With Greater Weight Gain and Oxygen Saturation Over Time: A Longitudinal Analysis of National Pediatric Cardiology-Quality Improvement Collaborative Phase 1 Data. Circulation, Vol 140, Issue Suppl_1.
2018 Publications
Examining Variation In Interstage Mortality Rates Across The National Pediatric Cardiology Quality Improvement Collaborative: Do Lower-Mortality Centers Have Lower-Risk Patients?
Bates, K. E., Yu, S., Lowery, R., Pasquali, S. K., Brown, D. W., Manning, P. B., & Uzark, K. (2018). Examining variation in interstage mortality rates across the National Pediatric Cardiology Quality Improvement Collaborative: Do lower-mortality centres have lower-risk patients? [Article]. Cardiology in the Young, 28(8), 1031-1036. https://doi.org/10.1017/S1047951118000926
Using a network organizational architecture to support the development of Learning Healthcare Systems.
Britto MT, Fuller SC, Kaplan HC, Kotagal U, Lannon CM, Margolis PA, Muething SE, Schoettker PJ, Seid M. BMJ Qual Saf. 2018 Nov;27(11):937-946. doi: 10.1136/bmjqs-2017-007219.
Reintervention following stage 1 palliation: A report from the NPC-QIC Registry
Buelow, M. W., Rudd, N., Tanem, J., Simpson, P., Bartz, P., & Hill, G. (2018). Reintervention following stage 1 palliation: A report from the NPC-QIC Registry [Article]. Congenital Heart Disease, 13(6), 919-926. https://doi.org/10.1111/chd.12655
Cardiac Networks United: an integrated paediatric and congenital cardiovascular research and improvement network.
Gaies M, Anderson J, Kipps A, Lorts A, Madsen N, Marino B, Costello JM, Brown D, Jocobs JP, Kasnic D, Lannon CM, Lihn S, Margolis PA. Cardiol Young. 2018 Dec 20:1-8. doi: 10.1017/S1047951118001683.
Home surveillance monitoring for high risk congenital heart newborns: Improving outcomes after single ventricle palliation - why, how & results
Nieves, J. A., Rudd, N. A., & Dobrolet, N. (2018). Home surveillance monitoring for high risk congenital heart newborns: Improving outcomes after single ventricle palliation - why, how & results [Review]. Progress in Pediatric Cardiology, 48, 14-25. https://doi.org/10.1016/j.ppedcard.2018.01.004
The Norwood Stage 1 procedure - conduct of perfusion: 2017 Survey results from NPC-QIC member institutions
Reagor, J. A., Clingan, S., Kulat, B. T., Matte, G. S., Voss, J., & Tweddell, J. S. (2018). The Norwood Stage 1 procedure - conduct of perfusion: 2017 Survey results from NPC-QIC member institutions [Article]. Perfusion United Kingdom, 33(8), 667-678. https://doi.org/10.1177/0267659118781173
Angiotensin converting enzyme inhibitors and interstage failure in infants with hypoplastic left heart syndrome
Yimgang, D. P., Sorkin, J. D., Evans, C. F., Abraham, D. S., & Rosenthal, G. L. (2018). Angiotensin converting enzyme inhibitors and interstage failure in infants with hypoplastic left heart syndrome [Article]. Congenital Heart Disease, 13(4), 533-540. https://doi.org/10.1111/chd.12622
Differences In Midterm Outcomes In Infants With Hypoplastic Left Heart Syndrome Diagnosed With Necrotizing Enterocolitis: NPC-QIC Database Analysis.
This is the pre-print version of the following article: Lopez NL, Gowda C, Backes CH, et al. Differences in midterm outcomes in infants with hypoplastic left heart syndrome diagnosed with necrotizing enterocolitis: NPCQIC database analysis, which has been published in final form at http:dx.doi.org/10.1111/chd.12602. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
2017 Publications
Reduction in Interstage Growth Failure in Infants With Hypoplastic Left Heart Syndrome and Impact on Stage 2 Outcomes: a Report From the National Pediatric Cardiology Quality Improvement Collaborative
Anderson JB, Brown D, Horsley M, Bates K, Hanke S, Lihn S, Tweddell J, and Lannon C. J Am Coll Cardiol. 2017 March, 69
Revenue Return on Investment for Center Involvement in a Quality Improvement Collaborative for a Rare Disease: National Pediatric Cardiology Quality Improvement Collaborative
Anderson JB, Brown D, Lihn S, Tweddell J, Hansen J, McDonald M, Lubiani G, and Lannon C. J Am Coll Cardiol. 2017 March, 69
Assessment Of Growth 6 Years After The Norwood Procedure.
Burch PT, Ravishankar C, Newburger JW, Lambert LM, Pemberton VL, Granger S, Floh AA, Anderson JB, Hill KD, Oster ME, Lewis AB, Schumacher KR, Zyblewski SC, Davies RR, Jacobs JP, Lai WW, Minch LL: Pediatric Heart Network Investigators. J. Pediatr. 2017 Jan;180:270-274. PMID 27855999. https://doi.org/10.1016/j.jpeds.2016.09.048.
Practice trends over time in the care of infants with hypoplastic left heart syndrome: A report from the National Pediatric Cardiology Quality Improvement Collaborative
Carlo, W. F., Cnota, J. F., Dabal, R. J., & Anderson, J. B. (2017). Practice trends over time in the care of infants with hypoplastic left heart syndrome: A report from the National Pediatric Cardiology Quality Improvement Collaborative [Article]. Congenital Heart Disease, 12(3), 315-321. https://doi.org/10.1111/chd.12442
Interstage Survival For Patients With Hypoplastic Left Heart Syndrome After Ecmo.
Fernandez, R. P., Joy, B. F., Allen, R., Stewart, J., Miller-Tate, H., Miao, Y., Nicholson, L., & Cua, C. L. (2017). Interstage Survival for Patients with Hypoplastic Left Heart Syndrome After ECMO [Article]. Pediatric Cardiology, 38(1), 50-55. https://doi.org/10.1007/s00246-016-1483-7
Interstage Weight Gain Is Associated With Survival After First-Stage Single-Ventricle Palliation
Evans, C. F., Sorkin, J. D., Abraham, D. S., Wehman, B., Kaushal, S., & Rosenthal, G. L. (2017). Interstage Weight Gain Is Associated With Survival After First-Stage Single-Ventricle Palliation [Conference Paper]. Annals of Thoracic Surgery, 104(2), 674-680. https://doi.org/10.1016/j.athoracsur.2016.12.031
Variability of antithrombotics use in patients with hypoplastic left heart syndrome and its variants following first- and second-stage palliation surgery: A national report using the National Pediatric Cardiology Quality Improvement Collaborative registry
Ramachandran, P., King, E., Nebbia, A., Beekman, R. H., & Anderson, J. B. (2017). Variability of antithrombotics use in patients with hypoplastic left heart syndrome and its variants following first- and second-stage palliation surgery: A national report using the National Pediatric Cardiology Quality Improvement Collaborative registry [Article]. Cardiology in the Young, 27(4), 731-738. https://doi.org/10.1017/S1047951116001189
2016 Publications
Digoxin Use Is Associated With Reduced Interstage Mortality In Patients With No History Of Arrhythmia After Stage I Palliation For Single Ventricle Heart Disease
Brown, D. W., Mangeot, C., Anderson, J. B., Peterson, L. E., King, E. C., Lihn, S. L., Neish, S. R., Fleishman, C., Phelps, C., Hanke, S., Beekman, R. H., & Lannon, C. M. (2016). Digoxin use is associated with reduced interstage mortality in patients with no history of arrhythmia after stage i palliation for single ventricle heart disease [Article]. Journal of the American Heart Association, 5(1), Article e002376. https://doi.org/10.1161/JAHA.115.002376.
Risk Factors For Unanticipated Readmissions During The Interstage: A Report From The National Pediatric Cardiology Quality Improvement Collaborative
Hanke, S. P., Joy, B., Riddle, E., Ravishankar, C., Peterson, L. E., King, E., Mangeot, C., Brown, D. W., Schoettker, P., Anderson, J. B., & Bates, K. E. (2016). Risk Factors for Unanticipated Readmissions During the Interstage: A Report From the National Pediatric Cardiology Quality Improvement Collaborative [Article]. Seminars in Thoracic and Cardiovascular Surgery, 28(4), 803-814. https://doi.org/10.1053/j.semtcvs.2016.08.011
Center Variability In Timing Of Stage 2 Palliation And Association With Interstage Mortality: A Report From The National Pediatric Cardiology Quality Improvement Collaborative
Hill, G. D., Rudd, N. A., Ghanayem, N. S., Hehir, D. A., & Bartz, P. J. (2016). Center Variability in Timing of Stage 2 Palliation and Association with Interstage Mortality: A Report from the National Pediatric Cardiology Quality Improvement Collaborative [Article]. Pediatric Cardiology, 37(8), 1516-1524. https://doi.org/10.1007/s00246-016-1465-9
Perioperative Feeding Approaches In Single Ventricle Infants: A Survey Of 46 Centers
Slicker, J., Sables-Baus, S., Lambert, L. M., Peterson, L. E., Woodard, F. K., & Ocampo, E. C. (2016). Perioperative Feeding Approaches in Single Ventricle Infants: A Survey of 46 Centers [Article]. Congenital Heart Disease, 11(6), 707-715. https://doi.org/10.1111/chd.12390
Creating A Lesion-Specific "Roadmap" For Ambulatory Care Following Surgery For Complex Congential Cardiac Disease.
Wernovsky G; Lihn SL; Olen MM. Cardiol Young. 2016 Jul 4:1-15. [Epub ahead of print] PMID:27373527 DOI: 10.1017/S1047951116000974 . This version is free to view and download for private research and study only.
2015 Publications
Improvement in Interstage Survival in a National Pediatric Cardiology Learning Network.
Anderson, J. B., Beekman, R. H., Kugler, J. D., Rosenthal, G. L., Jenkins, K. J., Klitzner, T. S., Martin, G. R., Neish, S. R., Brown, D. W., Mangeot, C., King, E., Peterson, L. E., Provost, L., & Lannon, C. (2015). Improvement in Interstage Survival in a National Pediatric Cardiology Learning Network [Article]. Circulation Cardiovascular Quality and Outcomes, 8(4), 428-436. https://doi.org/10.1161/CIRCOUTCOMES.115.001956
Quality Improvement in Pediatric Cardiology: The National Pediatric Cardiology Quality Improvement Collaborative
Anderson, J. B., Beekman, R. H., Martin, G. R., & Lannon, C. (2015). Quality improvement in pediatric cardiology: The national pediatric cardiology quality improvement collaborative. In Pediatric and Congenital Cardiac Care Volume 2 Quality Improvement and Patient Safety (pp. 51-68). https://doi.org/10.1007/978-1-4471-6566-8_4
Predictors of Prolonged Hospital Length of Stay Following Stage II Palliation of Hypoplastic Left Heart Syndrome (and Variants): Analysis of the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) Database.
Baker-Smith, C. M., Goldberg, S. W., & Rosenthal, G. L. (2015). Predictors of Prolonged Hospital Length of Stay Following Stage II Palliation of Hypoplastic Left Heart Syndrome (and Variants): Analysis of the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) Database [Article]. Pediatric Cardiology, 36(8), 1630-1641. https://doi.org/10.1007/s00246-015-1208-3
Impact of Prenatal Diagnosis in Survivors of Initial Palliation of Single Ventricle Heart Disease: Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Database
Brown, D. W., Cohen, K. E., O’Brien, P., Gauvreau, K., Klitzner, T. S., Beekman, R. H., Kugler, J. D., Martin, G. R., Neish, S. R., Rosenthal, G. L., Lannon, C., & Jenkins, K. J. (2015). Impact of Prenatal Diagnosis in Survivors of Initial Palliation of Single Ventricle Heart Disease: Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Database [Article]. Pediatric Cardiology, 36(2), 314-321. https://doi.org/10.1007/s00246-014-1005-4
Is Clinic Visit Frequency Associated with Weight Gain During the Interstage Period? A Report from the Joint Council on Congenital Heart Disease National Pediatric Cardiology Quality Improvement Collaborative (JCCHD-NPCQIC)
Hurst, D. M., Oster, M. E., Smith, S., & Clabby, M. L. (2015). Is Clinic Visit Frequency Associated with Weight Gain During the Interstage Period? A Report from the Joint Council on Congenital Heart Disease National Pediatric Cardiology Quality Improvement Collaborative (JCCHD-NPCQIC) [Article]. Pediatric Cardiology, 36(7), 1382-1385. https://doi.org/10.1007/s00246-015-1169-6
Transparency In A Pediatric Quality Improvement Collaborative: A Passionate Journey By NPC-QIC Clinicians And Parents
Lihn, S. L., Kugler, J. D., Peterson, L. E., Lannon, C. M., Pickles, D., & Beekman, R. H. (2015). Transparency in a Pediatric Quality Improvement Collaborative: A Passionate Journey by NPC-QIC Clinicians and Parents [Article]. Congenital Heart Disease, 10(6), 572-580. https://doi.org/10.1111/chd.12314
Association of Interstage Home Monitoring with Mortality, Readmissions, and Weight Gain: A Multicenter Study from the National Pediatric Cardiology Quality Improvement Collaborative
Oster, M. E., Ehrlich, A., King, E., Petit, C. J., Clabby, M., Smith, S., Glanville, M., Anderson, J., Darbie, L., & Beekman, R. H. (2015). Association of Interstage Home Monitoring with Mortality, Readmissions, and Weight Gain: A Multicenter Study from the National Pediatric Cardiology Quality Improvement Collaborative [Article]. Circulation, 132(6), 502-508. https://doi.org/10.1161/CIRCULATIONAHA.114.014107
Site Of Interstage Care, Resource Utilization, And Interstage Mortality.
Schidlow, D. N., Gauvreau, K., Patel, M., Uzark, K., & Brown, D. W. (2015). Site of interstage care, resource utilization, and interstage mortality: A report from the NPC-QIC registry [Article]. Pediatric Cardiology, 36(1), 126-131. https://doi.org/10.1007/s00246-014-0974-7
Quality Improvement Through Collaboration
Sarah B. Clauss, Jeffrey B. Anderson, Carole Lannon, Stacey Lihn, Robert H. Beekman, III, John D. Kugler, Gerard R. Martin. Current opinion in pediatrics, 2015 Oct;27(5):555-62. This is a non-final version of an article published in final form : Quality improvement through collaboration: The national pediatric quality improvement collaborative initiative. Published version available at http://dx.doi.org/10.1097/MOP.0000000000000263.
2014 Publications
Use Of A Learning Network To Improve Variation In Interstage Weight Gain After The Norwood Operation
Anderson, J. B., Beekman, R. H., Kugler, J. D., Rosenthal, G. L., Jenkins, K. J., Klitzner, T. S., Martin, G. R., Neish, S. R., Darbie, L., King, E., & Lannon, C. (2014). Use of a learning network to improve variation in interstage weight gain after the norwood operation [Article]. Congenital Heart Disease, 9(6), 512-520. https://doi.org/10.1111/chd.12232
Predictors of Prolonged Length of Intensive Care Unit Atay after Stage I Palliation: A Report from the National Pediatric Cardiology Quality Improvement Collaborative
Baker-Smith, C. M., Wilhelm, C. M., Neish, S. R., Klitzner, T. S., Beekman Iii, R. H., Kugler, J. D., Martin, G. R., Lannon, C., Jenkins, K. J., & Rosenthal, G. L. (2014). Predictors of prolonged length of intensive care unit stay after stage i palliation: A report from the National Pediatric Cardiology Quality Improvement Collaborative [Article]. Pediatric Cardiology, 35(3), 431-440. https://doi.org/10.1007/s00246-013-0797-y
Effect of Feeding Modality on Interstage Growth Following Stage I Palliation: A Report From the National Pediatric Cardiology Quality Improvement Collaborative
Hill, G. D., Hehir, D. A., Bartz, P. J., Rudd, N. A., Frommelt, M. A., Slicker, J., Tanem, J., Frontier, K., Xiang, Q., Wang, T., Tweddell, J. S., & Ghanayem, N. S. (2014). Effect of feeding modality on interstage growth after stage i palliation: A report from the National Pediatric Cardiology Quality Improvement Collaborative [Article]. Journal of Thoracic and Cardiovascular Surgery, 148(4), 1534-1539. https://doi.org/10.1016/j.jtcvs.2014.02.025
Site of Interstage Outpatient Care and Growth after the Norwood Operation
Patel, M. D., Uzark, K., Yu, S., Donohue, J., Pasquali, S. K., Schidlow, D., Brown, D. W., & Gelehrter, S. (2014). Site of interstage outpatient care and growth after the Norwood operation [Article]. Cardiology in the Young, 25(7), 1340-1347. https://doi.org/10.1017/S1047951114002480
2013 Publications
Impact Of Pharmacotherapy On Interstage Mortality And Weight Gain In Children With Single Ventricle.
Ghelani, S. J., Spurney, C. F., Martin, G. R., & Cross, R. R. (2013). Impact of pharmacotherapy on interstage mortality and weight gain in children with single ventricle [Article]. Congenital Heart Disease, 8(3), 219-227. https://doi.org/10.1111/chd.12020
Single-Ventricle Infant Home Monitoring Programs: Outcomes and Impact
Hehir, D. A., & Ghanayem, N. S. (2013). Single-ventricle infant home monitoring programs: Outcomes and impact [Review]. Current Opinion in Cardiology, 28(2), 97-102. https://doi.org/10.1097/HCO.0b013e32835dceaf
Pediatric Collaborative Networks For Quality Improvement And Research.
Lannon CM, Peterson LE. Acad Pediatr. 2013 Nov-Dec;13(6 Suppl):S69-74. doi: 10.1016/j.acap.2013.07.004. PMID: 24268088. This is the peer reviewed version of the article.
Nutrition and Growth in Congenital Heart Disease: A Challenge in Children
Medoff-Cooper, B., & Ravishankar, C. (2013). Nutrition and growth in congenital heart disease: A challenge in children [Review]. Current Opinion in Cardiology, 28(2), 122-129. https://doi.org/10.1097/HCO.0b013e32835dd005
Clinical Outcomes and Resource use for Infants with Hypoplastic Left Heart Syndrome during Bidirectional Glenn: Summary from the Joint Council for Congenital Heart Disease National Pediatric Cardiology Quality Improvement Collaborative Registry
Menon, S. C., McCandless, R. T., MacK, G. K., Lambert, L. M., McFadden, M., Williams, R. V., & Minich, L. L. (2013). Clinical outcomes and resource use for infants with hypoplastic left heart syndrome during bidirectional glenn: Summary from the joint council for congenital heart disease national pediatric cardiology quality improvement collaborative registry [Article]. Pediatric Cardiology, 34(1), 143-148. https://doi.org/10.1007/s00246-012-0403-8
Nutrition Algorithms For Infants With Hypoplastic Left Heart Syndrome; Birth Through The First Interstage Period.
Slicker, J., Hehir, D. A., Horsley, M., Monczka, J., Stern, K. W., Roman, B., Ocampo, E. C., Flanagan, L., Keenan, E., Lambert, L. M., Davis, D., Lamonica, M., Rollison, N., Heydarian, H., & Anderson, J. B. (2013). Nutrition Algorithms for Infants with Hypoplastic Left Heart Syndrome; Birth through the First Interstage Period [Article]. Congenital Heart Disease, 8(2), 89-102. https://doi.org/10.1111/j.1747-0803.2012.00705.x
Publications from 2012 and Earlier
Variation In Growth Of Infants With A Single Ventricle
Anderson, J. B., Iyer, S. B., Schidlow, D. N., Williams, R., Varadarajan, K., Horsley, M., Slicker, J., Pratt, J., King, E., & Lannon, C. (2012). Variation in growth of infants with a single ventricle [Article]. Journal of Pediatrics, 161(1), 16-e13. https://doi.org/10.1016/j.jpeds.2012.01.009
Variations In The Intensive Care Management And Course Of Single Ventricle Patients Following Stage I Palliation: A Report From The National Pediatric Cardiology Quality Improvement Collaborative
Baker-Smith, C. M., Neish, S. R., Klitzner, T. S., Beekman, R. H., Kugler, J. D., Martin, G. R., Lannon, C., Jenkins, K. J., & Rosenthal, G. L. (2011). Variation in Postoperative Care following Stage I Palliation for Single-ventricle Patients: A Report from the Joint Council on Congenital Heart Disease National Quality Improvement Collaborative [Article]. Congenital Heart Disease, 6(2), 116-127. https://doi.org/10.1111/j.1747-0803.2011.00507.x
Variation In Preoperative And Intraoperative Care For First-Stage Palliation Of Single-Ventricle Heart Disease: A Report From The Joint Council On Congenital Heart Disease National Quality Improvement Collaborative
Brown, D. W., Connor, J. A., Pigula, F. A., Usmani, K., Klitzner, T. S., Beekman Iii, R. H., Kugler, J. D., Martin, G. R., Neish, S. R., Rosenthal, G. L., Lannon, C., & Jenkins, K. J. (2011). Variation in Preoperative and Intraoperative Care for First-stage Palliation of Single-ventricle Heart Disease: A Report from the Joint Council on Congenital Heart Disease National Quality Improvement Collaborative [Article]. Congenital Heart Disease, 6(2), 108-115. https://doi.org/10.1111/j.1747-0803.2011.00508.x
Mechanisms of Exercise-Induced Pulmonary Hypertension in Patients with Cardiac Septal Defects
Brun, H., Moller, T., Fredriksen, P. M., Thaulow, E., Pripp, A. H., & Holmstrom, H. (2012). Mechanisms of exercise-induced pulmonary hypertension in patients with cardiac septal defects [Article]. Pediatric Cardiology, 33(5), 782-790. https://doi.org/10.1007/s00246-012-0216-9
Identified Mortality Risk Factors Associated With Presentation, Initial Hospitalisation, and Interstage Period for the Norwood Operation in a Multi-centre Registry: A Report from the National Pediatric Cardiology-Quality Improvement Collaborative
Cross, R. R., Harahsheh, A. S., McCarter, R., & Martin, G. R. (2008). Identified mortality risk factors associated with presentation, initial hospitalisation, and interstage period for the Norwood operation in a multi-centre registry: A report from the National Pediatric Cardiology-Quality Improvement Collaborative [Article]. Cardiology in the Young, 24(2), 253-262. https://doi.org/10.1017/S1047951113000127
Using Statistical Process Control To Identify Early Growth Failure Among Infants With Hypoplastic Left Heart Syndrome.
Iyer, S. B., Anderson, J. B., Slicker, J., Beekman, R. H., & Lannon, C. (2011). Using Statistical Process Control to Identify Early Growth Failure Among Infants With Hypoplastic Left Heart Syndrome [Review]. World Journal for Pediatric and Congenital Heart Surgery, 2(4), 576-585. https://doi.org/10.1177/2150135111416264
Variation In Interstage Outpatient Care After The Norwood Procedure: A Report From The Joint Council On Congenital Heart Disease National Quality Improvement Collaborative.
Schidlow, D. N., Anderson, J. B., Klitzner, T. S., Beekman Iii, R. H., Jenkins, K. J., Kugler, J. D., Martin, G. R., Neish, S. R., Rosenthal, G. L., & Lannon, C. (2011). Variation in Interstage Outpatient Care after the Norwood Procedure: A Report from the Joint Council on Congenital Heart Disease National Quality Improvement Collaborative [Conference Paper]. Congenital Heart Disease, 6(2), 98-107. https://doi.org/10.1111/j.1747-0803.2011.00509.
National Pediatric Cardiology Quality Improvement Collaborative: Lessons From Development And Early Years.
Anderson, J. B., Iyer, S. B., Beekman, R. H., Jenkins, K. J., Klitzner, T. S., Kugler, J. D., Martin, G. R., Neish, S. R., Rosenthal, G. L., & Lannon, C. M. (2011). National pediatric cardiology quality improvement collaborative: Lessons from development and early years [Article]. Progress in Pediatric Cardiology, 32(2), 103-109. https://doi.org/10.1016/j.ppedcard.2011.10.008
Abstract 18460: Post-Norwood Intensive Care Management And Patient Experience: Summary From The Joint Council For Congenital Heart Disease National Pediatric Cardiology Quality Improvement Collaborative Registry.
Baker-Smith C; Neish SR; Rosenthal GL; Beekman RH, III; Jenkins KJ; Kugler JD; Martin GR; Lannon C; Joint Council for Congenital Heart Disease (JCCHD). Circulation. 2010:122:A18460
Development Of A Pediatric Cardiology Quality Improvement Collaborative: From Inception To Implementation.
From the Joint Council on Congenital Heart Disease Quality Improvement Task Force. Kugler JD, Beekman RH, Rosenthal GL, Jenkins KJ, Klitzner TS, Martin GR, Neish RS, Lannon C., Joint Council for Congenital Heart Disease (JCCHD), Congenital Heart Disease. 2009 Sep-Oct;4(5):318-28. doi: 10.1111/j.1747-0803.2009.00328.x.