Interstage Change Package
Please note: Some toolkit materials were created before the National Pediatric Quality Improvement Collaborative (NPC-QIC) transitioned to Single Ventricle Outcomes Network (SV-ONE). These resources remain available to support improvement efforts across the single ventricle community, though some content may reference legacy network names, processes, or branding.
The “Interstage” is the time period, typically 4-6 months, between the first surgical palliation (S1P – typically a Norwood procedure) and the second (Glenn) operation. It is historically a time of risk for HLHS infants.
Since the Collaborative’s inception, NPC-QIC centers and parent partners have worked together to improve care and outcomes during the Interstage period.
This change package outlines strategies for clinicians, parents and researchers to use as they begin or advance Interstage quality improvement (QI) efforts.
Resources & Materials
Section: Introduction & Background
Section: Achieve Adequate Growth
Section: Phase II Learnings To Date
Section: Partner to Optimize Support for Patients and Families
Parent’s Guides to HLHS
Conquering CHD: Talk to Your Care Team: Guided Questions Tool Available in English and Spanish
Arizona Pediatric Cardiology Consultants’ and Phoenix Children’s Hospital’s Journeyboard
Interstage Home Monitoring For Infants With Single Ventricle Heart Disease
Telehealth for Pediatric Cardiology Practitioners in the Time of COVID-19