Project Phase: Pilot

Brief Summary: Children with single ventricle circulation are at high risk for developmental delays affecting cognition, motor skills and school readiness. Although early intervention and neurodevelopmental specialist support are critical, many of these children do not receive timely services. As SV-ONE expands its focus to the post-Glenn to Fontan period, this project aims to improve access to neurodevelopmental evaluations and connect families to needed resources ultimately support better developmental outcomes and school readiness.  This project includes identifying gaps in the neurodevelopmental evaluation and referral process for children.

SMART Aim:

• Increase the percentage of patients who receive a comprehensive* neurodevelopment evaluation between the ages of 11-30 months of age.

  • *Comprehensive evaluation includes either early intervention evaluation (EI) or an evaluation in a neurodevelopment clinic in an outpatient setting 

Co-Leaders: Jesse Boyett Anderson, MD MS & Heather Watson, BSN RN CPN

Executive Sponsor: Kiona Allen, MD

Measures:

• Percent of patients who completed a comprehensive ND evaluation between 11-30 months of age out of patients 30 months of age

• Percent of patients who received an Early Intervention referral between 11-30 months of age out of patients 30 months of age

• Percent of patients who received a referral for ND clinic evaluation between 11-30 months of age out of the number of patients 30 months of age

• Percent of patients who received an Early Intervention evaluation between 11-30 months of age out of the number of patients 30 months of age

• Percent of patients who received an evaluation at an ND clinic between 11-30 months of age out of the number of patients 30 months of age

• Distance in miles from patient home to ND clinic evaluation location

Questions? Please contact info@svone.org.

How to Engage With This Project

Please contact info@svone.org if your center is interested in participating in this project.